The Lady Speaks

Parachutes – Healthcare in America

La Lubu at Feministe details the hell she went through after her daughter was born at 25 weeks gestation, weighing just one pound, ten ounces. From the neonatalogist’s practiced speech and her daughter’s health crises to being pink-slipped by her employer and fighting to retain her insurance coverage while fighting for her daughter’s life.

What Color Are the Holes in Your Parachute?

[…] A couple of weeks later, the honeymoon period ended. Her bowel was perforated, she went into sepsis, acquired the aforementioned NEC and a particularly gruesome complication—Disseminated Intravascular Coagulation, or DIC for short. Known as “Death Is Coming” to experienced medical personnel. I did not know how bad DIC was at the time; when I tell her NICU story to medical people, and tell them she had it, their jaws tend to drop and their eyes bug out. Surviving DIC isn’t the norm. I held her little hand and quietly sang songs to her, mostly Etta James and Koko Taylor, but some vintage Elton John, Rolling Stones, even some Mary J. Blige. Just, whatever I could think of at the time. I told her what sunsets looked like, ‘cuz her pod was facing west, but the windows were too high for her to see. I told her, just in case she was wondering why the light changed during the day as it moved into night. I tried to describe the taste of salsiccia and stuffed shells to her, piping hot rigatoni with rich, spicy sugu and fresh grated parmesan on top. What the wind felt like on the face and in the hair. All the places we would go and see when she got healthy and got outta there. I wanted to give her something to fight for. And just like on that first day, her respiratory and heart rate, and her oxygen saturation rate would improve as I spoke. It was a battle, and at one point a nurse told me point blank that if I was thinking about getting her baptized, perhaps I’d like to call a priest. Continue reading

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October 23, 2007 Posted by | America, Children, Family, Government, Health, Life, SCHIP, White House | 4 Comments